i woke up laying on my stomach, butt in the air,with my face smashed up against a pillow and glasses half off on forehead in a pool of slobber. I could only see out of one eye and my body wasn't cooperating just yet as I lay there confused as f💥💋k, processing I'm home this is my bed, look around, check out the ceiling it's vaulted I recognize that as being my Walker home. I'm dressed in daytime clothes so I've already been out of bed today., that's best news I can silently receive, that means my
ass can get up again! Whooh get up slow remember you have POTTS and it's been crazy lately. (my heartbeat beats loud and fast and my blood pressure drops when I go from sitting to standing.)
i had been doing so welll. No seizures for so long!.. I was finally starting to be able to go on walks alone and be without my husband every second of the time.(not that it's bad, I love you babe) For the last 3 days the damn seizures have been back.
I know why they are back, it's my foot pain. It keeps getting worse and I'm not getting any relief.
ok, push myself up, gather my nice soft hoodie sweatshirt from the bed and slide down. (This bed/mattress is up high) I need to see if I walk....... strangely I feel like that isn't always the case.
After seizures Chadrick immediately gets me to bed because I crash into a short nap usually waking up temporarily confused with some or total memory loss.. I'll have an enormous migraine and sometimes part of my head or face hurts, then I fall into a deep sleep and when I wake up I'm much better.. I'll have a few questions but I can get my shit together
i have to have very small meals 6 times a day and I'm on a soft wet diet (mush) so I pretty much get rewarded with a pudding cup every 20 minutes if I'm good! Cortlan is always interested in what I've got because he thinks it should all be sweet if it's in that size cup. I've witnessed very surprised faces from him expecting sweet when getting pesto or specialty cheeses, spicy/hot, or Thai noodles.
Im just going to get myself out of bed for the 4,5,or maybe6th time of the day and restart my day and see how everyone else is doing.
ass can get up again! Whooh get up slow remember you have POTTS and it's been crazy lately. (my heartbeat beats loud and fast and my blood pressure drops when I go from sitting to standing.)
i had been doing so welll. No seizures for so long!.. I was finally starting to be able to go on walks alone and be without my husband every second of the time.(not that it's bad, I love you babe) For the last 3 days the damn seizures have been back.
I know why they are back, it's my foot pain. It keeps getting worse and I'm not getting any relief.
ok, push myself up, gather my nice soft hoodie sweatshirt from the bed and slide down. (This bed/mattress is up high) I need to see if I walk....... strangely I feel like that isn't always the case.
After seizures Chadrick immediately gets me to bed because I crash into a short nap usually waking up temporarily confused with some or total memory loss.. I'll have an enormous migraine and sometimes part of my head or face hurts, then I fall into a deep sleep and when I wake up I'm much better.. I'll have a few questions but I can get my shit together
i have to have very small meals 6 times a day and I'm on a soft wet diet (mush) so I pretty much get rewarded with a pudding cup every 20 minutes if I'm good! Cortlan is always interested in what I've got because he thinks it should all be sweet if it's in that size cup. I've witnessed very surprised faces from him expecting sweet when getting pesto or specialty cheeses, spicy/hot, or Thai noodles.
Im just going to get myself out of bed for the 4,5,or maybe6th time of the day and restart my day and see how everyone else is doing.