That's all it is on doctoring days, just hurry up and wait. Unfortunately most days are day spent with doctors. It starts from waking with the noise of children and hurring to get the dog outside with no accidents and it doesn't end until I'm right back safe in my bed that night. See a normal-slow pase for you is me getting winded and needing a break 3 minutes in. So if there is any specific appointment/activitie/place to be at a certain time it creates a huge amount of stress physical and mentally on me and I will feel rushed-hurry up and wait.
Today I struggled with the words of my Endroconologist. She explained how when some people are sick they loose a lot of weight and others gain.It struck me really REALLY hard (not the gaining weight part, that's been going on for months I'm used to that!) the part where she categorized me as a "SICK PERSON"...... I know everything that I'm diagnosed with, I know that I am handicap. I know that I have many diagnosed invisible debilitating disabling diseases, BUT "sick", that's one I have not considered myself.
Another appointment never a clear answer, we will try this and then that, test after and double up that. Cari you are a difficult one, it's never relieving to hear that it's all a trial. That it's not normal, they've never seen/heard/read about this or that and they are going to consult him or her.
All I wanna say is fix me. Fix me and quit telling me how rare or unheard of this or that is! Be that ONE doctor that puts all the pieces together. Or be that one doctor that tells me I can be done. Done searching for answers and magic medicine. Done hurrying hundreds miles to meet new specialists that only say the same thing over and over, try this and that hurry up and wait and see no results.