This past week I had multiple doctor appointments at multiple locations. I spent 4 days in the car. Long days only getting out for a short time. I used to say so often "that's the life of a Lyme-ie!" ( someone with Lyme disease) but my Lyme is in remission so now I'll say; this is the life of a girl with multiple chronic Autoimmune Diseases. I will now spend this week recovering from the weekend (when my monster baby is home and girlie had 5 active dancers over)! And recovering from last weeks travel.
What sticks with me; "Cari let's see if we can work on your med list" says all but one doctor. I politely explain we will be doing no such thing to all the begging doctors but I probably owe an apology to the last one.
"No we are not messing with my meds, we are not taking any away or adjusting the dosage. You will represcribe and keep everything the same please!"
I don't care how many pills I'm taking and what anyone has to say about it. I don't care how much weight (well ya I do it sucks but I pretend) I gain. I don't care if you think something isn't working, I don't want to risk it.
Last year at this time I was always using a walker and quite often stuck in my wheel chair. I weighed 80 lbs. I was to weak to do anything and in too much pain to move around and get out of the house. Last year at this time I was wearing diapers and could not bathe myself. I was having seizures daily, needing naps multiple times a day. I was unable to play with my own baby on the floor, his hugs hurt me! Watching my girlie dance made me nasious from the spinning and I couldn't listen to the music. Riding in the car I was unable to look out the windows with out getting sick. The nerves were soo bad every step I took was on broken glass and my ankle bones and up all my joints were broken, my brain was on overload and I couldn't make past from present. My brain was mush! Confusion was very high and that led to anxiety and panic attacks. SO NO DOCTOR NUMBER 1,2,and 3 WE ARE ABSOLUTELY NOT CHANGING ANYTHING WITH MY MEDS! It took me a year to get this far and I'm not going back! I know what it's like spending Thanksgivings in a bed and hospital. I know what it does to a family when you are in the hospital over a month during Christmas. I know what it's like to live in a nursing home for a month. I refuse to go backwards only forwards! And I'm not comfortable taking away any of my drugs that got me this far just yet. Last time this year my quality of life really sucked!!! This year, right now my life is so much better! And I have one doctor that took the time to listen to me to thank for that:)
I wish I could go the all natural herbal way, but it's not an option, I tried for years. I take tons of supplements and am a huge user of essential oils but there's only so much that they can do. I'm on a stricter diet than you'd believe so I won't even tell you, I'll just go chew some cardboard. And if I could exercise I would like a junkie!! (I'm going to start swimming this week)
Sometimes I think the doctors try to mess you up so you have to come back sooner to see them! Arrgghh
Let's just examine and go guys~ keeping it real here